staciec71

Updated Oct 30

Poshing with Ménière's Disease➡️PLEASE READ⬅️

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I ❤️ Poshing and all the people I've met but it can be so hard at times when my Ménière's flares up and the vertigo hits me. I never know how long I'm going to be down with it. I've had Ménière's Disease for 7 years now. I apologize if I don't respond to comments or share back right away. I still ship items out the same day or the next so there's no need to worry about that😉 I just ask that you help spread awareness for this terrible disease so that hopefully one day there will be a cure!!

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britannea and 10 others like this

17 Comments

karint I can not imagine what that must be like to live with on a daily basis. I just know how miserable I am with a simple earache, so my heart sincerely goes out to you ❤️

Apr 05Reply

staciec71 @karint You are so sweet, thank you for your very kind words. Not going to lie some days are pretty rough. I have some other health issues that came on immediately after my first ear surgery so I deal with nerve damage in my neck and head and chronic migraines too but it could be worse. I pray for a cure for Ménière's Disease. Thank you for sharing😉😊I'm lucky I have a very supportive family😊 You have a beautiful closet👠👗💕💕

Apr 05Reply

exwolfe OMG!! I think I am going to be happy to know you!! I was diagnosed with Menieres about 3 years ago and love to talk with others about it. I had to make the decision to leave my job Feb. 2015.

Apr 06Reply

staciec71 @exwolfe I'm here anytime or if you have Facebook I'm listed as Stacie Carnahan. I had to give up my job in 2011. It's a horrible disease. I also have occipital neuralgia and chronic migraines that I developed immediately after the first ear surgery for my Ménière's back in 2010. I pray they find a cure one day. Weather and the barometric pressure plays a big part in how I feel. Have a great day!

Apr 06Reply

exwolfe I will do a fb request. would be willing to email also

Apr 06Reply

boutiqueboro @staciec71 My dad had been dealing with Meniere's for years! He's always been so rough and tough. This has been the one thing that has knocked him down time and time again! He's still a champ though!

Apr 23Reply

staciec71 @hanrae333 Many prayers for your Dad!! It's such a life changing disease that's for sure. I would have responded to you sooner but had been down with a bad flare up. Have a great day!💕💕

Apr 28Reply

britannea My mom suffers from this disease, and it is indeed difficult when people don't know what it is. I'm hoping for a cure, too!! Take good care of yourself!💕

Sep 16Reply

queenofhaute GOD BLESS YOU! I’m so sorry! I wish God would just remove all chronic ailments. I understand how you feel and everything you wrote I was just shaking my head Yes to. I’m 45 , so 25 yrs ago this past March 17th my life began a course of change I never saw coming

Apr 27Reply

queenofhaute I went from being a healthy 20 year old to having laparoscopic surgery for endometriosis where the surgeon perforated my bowels but told no one for TJ next 55 days my intestines SHUT DOWN but the surgeon refused to allow me ER help. HMO PLAN AT THE TIME. ON THE 55th day,after my mother threatened to kill him ,I finally saw a gastric dr. I was vomiting blood by this time

Apr 27Reply

queenofhaute He told me he wasn’t sure what was going on but he called a surgeon in who realized I was dying quickly! Emergency surgery done to take out my bowels and cut them away from each other, then every year another one for 6 years. I lost twins due to the damage, I’ve lost all nutrients

Apr 27Reply

queenofhaute To other parts of my body because your intestines try to rebuild themselves and take all nutrients for themselves. My bones, joints, discs have all deteriorated, even my teeth by the age of 27!i also have fibromyalgia, dysautonomia, ptsd, bipolar depression disorder, anxiety disorder due to a 5 hour hostage situation at 14 yrs old and 3 additional rapes by the time I was 29.

Apr 27Reply

queenofhaute I need surgery desperately but no dr will risk his career and attempt to make my life bearable becausemy intestines are adhered to my abdominal wall, rib cage in front and back and they aren’t sure what organs but I was given a 50% chance of surviving an operation

Apr 27Reply

queenofhaute I’m 2011 when I was 39. Then a dr did a nerve block for my daily migraine ms and induced 10+ years of seizures. Last year I lost my dad to cancer and he never believed I was truly sick. Also last year I dove into a pool and burst 3 vertebrae and walked out of the pool without any assistance an

Apr 27Reply

queenofhaute I went home told my mother ‘I just broke my neck’ but I was loopy and tired so I went to bed! I sought medical attention the next night and the drs freaked!

Apr 27Reply

queenofhaute The ONE thing I took away from the broken neck was God has a plan for me, because I should not be here! I pray you know that sometimes it’s people like us that are chosen By Him to show our strength and faith even when we want to curl up in the fetal position and bawl. We ARE SURVIVORS!! Praying for you!!!! 💜💗💚❤️💛

Apr 27Reply

queenofhaute @staciec71 please do not have an Occipital Nerve Blocck without speaking to the anesthesiologist FIRST. That’s how I began having 7 types of seizures. Some days 4 to 7 a day some days one. But we are all still kicking!! KICKING BEHIND!!!! Woohoo!!!

Apr 27Reply