🥄🥄 Spoonies Share & Support Group 🥄🥄
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Welcome fellow spoonies!
✳️ Updated the humor! ✳️
This started as a way for me to support other Poshers with chronic illnesses, but has morphed into a very loosely defined share group!
If you’d like to be part of our ongoing group, just introduce yourself, have a *compliant* closet, & share others here as you are able.
✳️ No need to disclose your illness unless you want to. ✳️
No set number of Poshers, items, or days. We’re just here to support each other.
If you have questions, just ask!
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335 Comments
starbabyonline
All images yanked from Google and belong to their respective owners.
jenrossi1217
I'm a "spoonie," too! I have a mTBI. I was glad to find "Posh" because I can't work, if allows me to keep my wardrobe up to date.
starbabyonline
@jenrossi1217 Hi, Jennifer. Good to know I was already following you! I'm in the TBI club, too, along with a host of other things: fibromyalgia, stroke survivor, Factor VIII Disease, GAD/MDD/PTSD, osteoarthritis, many TIA's, chronic migraines, and a totally f'd up spine. My bizarre sense of humor keeps me grounded, lol.
starbabyonline
@jenrossi1217 I agree about that being a great thing about Poshmark. I'm not able to hold down a full-time job and be dependable. I've been on disability since 2008 but I'm back in school because I can't afford to live on my SSDI alone. I may hit retirement age by the time I graduate, but it keeps me focused on something else besides thinking about all the ways my body is trying to do me in. LOL. I'm going to make sure to pay closer attention to your closet! 🌟
jenrossi1217
@starbabyonline I understand what you mean about the body rebelling on you. I feel like I am made up of random parts- and I can't find the receipts! I'm 41 and have more health issues than my 90 year old grandma in law. But, I do what I can- when I can. I was heavy in share groups, etc, last year, but my migraine became out of control, so I had to step back.
starbabyonline
@jenrossi1217 I love this: "I feel like I am made up of random parts- and I can't find the receipts!" Perfect analogy!
jodisjewelry
@nic39. Read this! I think I've mentioned this to u before. Nicole and I are also spoonies! 😂
nic39
@jodisjewelry I was just commenting to Debby!! She is going to be joining our group, yay!!! Yes, Debby Jodi and I are both spoon ladies!💕💕💕
jodisjewelry
@nic39 I saw that!!! Yay'!! Welcome Debby! I came to her closet to check for compliance, but saw she's a compliance advocate and in other Share groups, so then I started shopping....then I fell asleep! Lol
starbabyonline
@jodisjewelry and @nic39 - Hi Jodi and Nicole! I always give spoonies extra shares. I'm glad I'm going to be in your group, yay! I saw it from someone I was sharing this morning & figured I'd check it out. Sounds a little complicated but I think I get the idea. I've always supported other spoonies on here but no one has ever said "hey that's me", so I figured I'd make a post last night & it seems to have worked. I hope a lot of people come in on here so I can support them!
starbabyonline
@jodisjewelry And I can totally relate to the started-anything-and-fell-asleep. Lol!
nic39
@starbabyonline yes, I have met a ton of ladies with chronic debilating diseases. We all need to remember to be kind to ourselves!! Don't worry about the share group it's not hard one you catch on. All the ladies are so support so always feel free to ask if you don't understand something :)
azfablss1
Where can I find one of these? I use the Spoon Theory almost daily to help explain psoriatic arthritis and fibromyalgia. So many just don't understand and it is the perfect tool!
4luxeshoetique
Spoonie here🙋
starbabyonline
@4luxeshoetique Sorry, I just saw this! Had outpatient surgery today so haven't really be on here until now. I just shot some shares your way.
starbabyonline
@azfablss1 Sorry I missed your comment. It's an image I found on Google Images. I think it was from an Etsy shop. It's very cool, isn't it? Going to shoot some shares to you as soon as I post this.
4luxeshoetique
Oh wow thanks a million spoonie, im noticing there's a lot of sick ppl on here. It makes me feel better that i am not the only one
azfablss1
@starbabyonline absolutely on Point
antiqueorunique
@starbabyonline Oh Wow there's a name for it. This is so perfect. You guys "get it". This is wonderful!!
starbabyonline
@antiqueorunique Yep, Dyana, the term "spoonie" has been around for a long time. Allow me to officially welcome you to the fold! *gentle hugs*
antiqueorunique
@starbabyonline Thank you! First me, and then my poor fiancé too. We look normal (except for the scar down my neck) but yeah, we live the life and now I have a name for it. Glad I found you!
starbabyonline
@antiqueorunique Follow Christine on Fb or IG under ButYouDontLookSick. There are so many people I follow or have become friends with dating back to MySpace days that I can't even begin to think of them all right now. TheMighty.com is also a really good site - I believe they're on Fb, IG, and Twitter.
styledlife
@starbabyonline I found my Posh tribe!!!! I saw this photo you posted and said Yay! ♡ Long time spoonie here. Multiple diagnoses and chronic pain etc. I'm so grateful to meet others here on Posh!! This is a life line and fun space. I hope to sell some items to help my medical costs. Xo hugs to all of us in the "Spoon club". ♡♡♡♡
starbabyonline
@styledlife Yes! Welcome to the tribe at least here on Poshmark. I adore those rain boots that you have in your closet there are so pretty. I just shared some of your items. I saw in the beginning of your Meet the Posher that you're in the Deep South. That must mean you're north of me. Haha. Most of Florida is the only place I know where you have to drive north to get to the Deep South, LOL.
styledlife
@starbabyonline Aww, thank you! Those rain boots are super cute, aren't they!? And very comfy. I just don't get out enough to justify keeping them. Close guess on my state! I'm in Alabama. You're right- Florida IS deeper south. But FL feels different than Bama with all the people settling there from up North or vacationing from all around. I love visiting FL. Miss the beaches so much! ♡ I'm a Pisces- so water is my thing. Being landlocked is no fun. Lol xoxo
starbabyonline
@chellebellesc If you can identify with the Spoon Theory, you definitely are a spoonie. I have a bunch of oddball/rare diseases/conditions which took forever to put a name on, so I understand that "not knowing" feeling. Life is challenging enough already. There's no need to not support each other when we get the chance. Sent some extra shares your way.
starbabyonline
@chellebellesc Well, I was going to say that's not necessary, but I saw that you already did. I was doing a bunch of shares for a few share groups and just saw this. Thank you!
poozer50
Love this post, made me laugh out loud, cause, if you can't laugh at yourself your in trouble. It's hard for others to understand why I can no longer make plans even a day in advance. You never know when the pain monster is going to put me down. Don't you just detest having to make that call and tell them, not today, I just can't move.
triciatx
@starbabyonline love this ❤️ I have congestive heart failure (Cardiomyopathy) w/ subset nuerological & endocrine disorders. People just don't understand that you can look okay and be very ill. You never know what someone else may be struggling with. I never judge 💋💋💋💋
starbabyonline
@poozer50 Yep, it's not a fun way to live, never really being able to plan anything with certainty. I went back to school a couple of years ago and even following my class schedules/assignments is sometimes really difficult. That warped sense of humor really is a lifesaver at times. 😁
starbabyonline
@triciatx Yep, people with invisible illnesses are masters of putting on that smiley face mask all the time and trying to fit in. I have a huge collection of them myself. 😃😁😀Today is it particularly bad day so this is probably the only time I will be on Posh all day.
bimmy123
@starbabyonline Omg, the bingo is my life! So funny and sad at the same time! And so true... I have CRPS which to most people they never heard of it. But if you check the McGills Pain Scale, it is the very highest and boy howdy it has kicked my butt! I appreciate that there are people like you out there doing all of us a huge service! Thank you for YOU!
starbabyonline
@bimmy123 I know, I love that bingo board, too - lol! I have a friend who has CRPS, so I am well aware of it. I actually think that doctor's offices should have the pain scale I posted above in their offices. *wink*
tanyalparker
@starbabyonline I can't believe I didn't read this before...I'm 100% a spoonie 🥄❤️ & would love to support other posh 🥄spoonies as well!! I can totally relate to everything posted in the descriptions & photos...it's been especially rough lately. I hope all is well with you and I hope you'll check out my closet @tanyalparker. Have a wonderful day😊❤️🌼
starbabyonline
@tanyalparker Good to know! There's a growing list here to support, that's for sure. I just sent some extra shares your way. Been a tough week here, too. In the middle of a flare and feels like my body is on fire. Staying busy between school and Posh though, and trying to ignore it. *gentle hugs*
beardnbutterfly
I love this so much! ❤️❤️❤️❤️❤️
ellydru
I'm a silent chronic illness and pain warrior. I use the spoon theory often. I've suffered with CES (Cauda Equina Syndrome) for 5 years. Thank you for posting this and so nice to meet you. xo
starbabyonline
@hjmarquis Sorry I missed this comment before. Thanks!
starbabyonline
@ellydru Glad you like it. It's nice to meet you as well, fellow spoonie!
katieskorner
@katieskorner I'm a spoonie :) PTSD and fibromyalgia
starbabyonline
@katieskorner Sorry, just saw this. I'm in that fibro/ptsd club with you. I will send out some shares for you a little later today. On my way out the door. @lillylife - Ugh, so sorry to hear that! Most people are genuinely nice, but the ones that suck like that seem to take up too much of your energy. Deep breaths and let it go. Shares for you too when I get back home.
starbabyonline
@lillylife I don't expect share-backs. I just like to support other spoonies. Don't let others get you down. Their criticisms are reflections on themselves; not you. Go watch some cutesy-syrupy-sweet baby animal videos and smile.
starbabyonline
I've decided to make this a "share-when-I-have-extra-spoons_ share group. I welcome you to do the same. Just tagging you so if you see a series of tags, you don't think you somehow missed a share group posting, lol. No need for share-backs unless you want to/are able to. @jenrossi1217 @jodisjewelry @nic39 @azfablss1 @4luxeshoetique @antiqueorunique @styledlife @chellebellesc @poozer50 @triciatx @bimmy123 @tanyalparker @hjmarquis @ellydru @katieskorner @lillylife
starbabyonline
Oooooo! That's my first-ever private share list! Gotta start somewhere; might as well be with fellow spoonies. Hoping for lots of extra spoons - and sales - for everyone!
triciatx
@starbabyonline Thanks, I definitely appreciate this and would love to support others that relate to this post. 💋 Tricia
beardnbutterfly
@starbabyonline I love this so much!!! Story of my life. 💖💖💖💖💖
styledlife
@starbabyonline I LOVE THIS and YOU soooo much!! I can't tell you how I literally jumped up and hugged my phone seeing your message! ♡♡♡♡♡♡♡ My husband was like "What?" Lol!! Much gratitude to you and our spoonie-posh family here! Can't wait to "meet" more of yall! ;)
jenrossi1217
@starbabyonline how in risibly thoughtful and generous of you. I ❤️ the idea. ❤️❤️
jodisjewelry
@ptl8 @nic39 @wenrella @lhaag721 @flutter_buys. Please tag other spoonies!
starbabyonline
@triciatx @hjmarquis @styledlife @jenrossi1217 @jodisjewelry Your comments made my Saturday! Here's some extra spoons for you! 🥄🥄🥄🥄🥄
bimmy123
@starbabyonline Thank you so much for thinking of me! As of now, I'm still able to type but it is hard on some days. I would love to participate but you'll have to educate me on what to do. Do I share the names of the folks you gave me? Fellow spoonies?
abidingapparel
@starbabyonline Thank you for this, what a great idea for mutual support and encouragement and of course it is good to blow off steam too.
starbabyonline
@bimmy123 Because we're all spoonies, I'm not going to make any kind of rules right now except to support each other as you are able. No specific number of items, no specific number of days. I don't want this to be an atmosphere where another obligation creates more stress, because we all know what stress can do to a chronic illness. Just share whoever is in here, as you are able. Sound good?
starbabyonline
@abidingapparel Thanks, and welcome to our little group.
midwest_threads
Fellow spoonie!! 💚💚 I have Lyme Disease and just got a PICC line on Tuesday. Hoping for some calm after this big storm I'm about to start in my body!
bimmy123
@starbabyonline It sounds wonderful Debby! You got the right idea because you understand. And I know we Spoonies really appreciate that! It makes me want to share even more because of that. So I'll just pick anyone on that list you sent me? And share as many as I can, right?
starbabyonline
@midwest_threads Hi and welcome! I have a few friends with Lyme Disease, so I feel for you. Just shared a few things from your closet - that lemon dress is so cute!
starbabyonline
@bimmy123 You got it exactly, Bimmy! Pick one and share a lot, or pick all and share a few items from each closet. I usually share 5 items from each closet because that's simple. Do whatever you're up for. I'm having a burst of energy after being down with a horrid migraine for 2 days, so I'm taking advantage of it by listing and sharing a lot. 🥄
styledlife
@starbabyonline xoxo ♡♡♡ I'm so glad you thought of this! Great idea! I'm sorry you deal with migraines too. I can empathize completely. Posh takes a lot of time and energy, so some days it's more challenging. Love this little group here we are creating! ♡♡♡ I'll be following everyone here and sharing as I can. No expectations back! ♧
styledlife
@midwest_threads Hi! I'm sorry you have Lyme disease. That's what I have too....late stage, chronic Lyme and Dysautonomia/ EDS. Wishing you all the best healing and love for your treatment! Xoxo ♡♡♡♡
katieskorner
@jenrossi1217 @jodisjewelry @nic39 @azfablss1 @4luxeshoetique @antiqueorunique @styledlife @chellebellesc @poozer50 @triciatx @bimmy123 @tanyalparker @hjmarquis @ellydru @katieskorner @lillylife
I had some extra spoons today so I sent around some posh love :) Sending gentle hugs to everyone!
poozer50
@katieskorner 💕💕
azfablss1
@katieskorner Hugs right back atcha! Moving today so need all of the spoons I can get right now.
styledlife
@katieskorner Thanks Lovely!! Shared back.♡♡♡Gentle Hugs xoxo
starbabyonline
@azfablss1 Be careful moving and don't push yourself! When I moved in December, I didn't have much help and consequently lifted things I shouldn't have to get it done. Ended up tearing my rotator cuff (for the third time - ugh!) and still going to physical therapy because of it. Lots of spoons coming your way!
azfablss1
@starbabyonline I hear you. I Do have movers coming but still end up doing a ton myself
beardnbutterfly
@starbabyonline had a spoon just for you. 💖
starbabyonline
Shared the love all around today, and wishing lots of extra spoons for everyone! 🥄🥄🥄
starbabyonline
@hjmarquis You're so sweet - thank you! Except for my shoulder, having a pretty good day today, so I'm sharing lots.
beardnbutterfly
@starbabyonline i think once I wake up I will be too! Just don't overdo yourself!! 💖💖
katieskorner
I'm sorry I havent had any extra spoons lately :( I've had lots of diagnostic testing to verify that I dont have something instead of Fibro. All came back negative so fibro it is! In the midst of all of this im taking summer classes
starbabyonline
@katieskorner No need to apologize! This is just a "share-as-you-are-able" group. What classes are you taking? I was in summer semester for the first part of the summer, but have had July and the first two weeks of August off until classes start again on the 21st.
katieskorner
@starbabyonline I am currently a social work major so this summer I took a criminal Justice class, nonprofit management, and race class and gender. But I am planning to go to law school after graduation and may be changing my major for this next semester
starbabyonline
@katieskorner And good to know that's the definite dx so you can treat accordingly. And good that's it's "only" fibro, even though that's usually overwhelming enough.
starbabyonline
@katieskorner Very cool. I was a psych major until last semester, and changed my major at the insistence of one of my professors, going into the Graphic Design program instead. There are only 20 students who get chosen for the graphic design program each year, so I was kind of bowled over that she and another prof encouraged me to be in it as a major instead of just taking a few classes. I also took an incredible psychology of gender studies class last semester.
katieskorner
@starbabyonline graphic design sounds amazing! I wish I was able to do that!
swanky_panky
Hi everyone. I am closing my closet on 8/3 due to health (Ankylosing Spondylitis, fibromyalgia, Raynauds, diastolic dysfunction and liver failure. . It's been a great ride and I'm so grateful to Poshmark for the contacts and income. I'd love to sell as much as possible before I give to charity or friends. Feel free to make appropriate offers. I think items are priced fairly and you may even want to add them to your closet. Wishing all of you continued success on Posh. 💕
alluck1210
@starbabyonline you know, I'm hosting again in Oct. I can send an email to posh asking for you to host with me if you want to host. You'll also have to send one asking to host with me. That way you're first party isn't with people you don't know and I can help you with it. You don't have to. Don't feel like you need to lol.
starbabyonline
@jenrossi1217 @jodisjewelry @nic39 @azfablss1 @4luxeshoetique @antiqueorunique @styledlife @chellebellesc @poozer50 @triciatx @bimmy123 @tanyalparker @hjmarquis @ellydru @katieskorner @lillylife @abidingapparel @midwest_threads 🥄🥄🥄 Please read above and help a fellow spoonie swanky_panky for the last day of her closet?
starbabyonline
Help = buying or sharing her closet closing post. @swanky_panky
styledlife
@starbabyonline Shared a bunch from her closet and her sign. Hope it helps! ♡♡♡
styledlife
@swanky_panky I'm sorry you are not doing well. ♡ I wish you good health and happiness. ♡♡♡
starbabyonline
@alluck1210 Allison, wow, that would be amazing! Who do I email at Posh? Just support or what? You, my friend, are awesome! *muah!*
alluck1210
@starbabyonline Send posh support an email asking if you can host with me, include my user/closet name. The date is Oct 7, the evening party. Just include all that info and I'll send them an email now :)
starbabyonline
@alluck1210 Allison, you rock! Thanks!
alluck1210
@starbabyonline my pleasure! I've sent my email earlier 🌷
starbabyonline
@alluck1210 Sent! Thanks again.
life_is_good_97
Hey everyone! I'm a spoonie & a potsie. I also have MS and docs are almost positive I have lupus. Much posh love to you! ❤️
starbabyonline
@sdiehl77 Hi and welcome to the group! Without Googling, I don-t know what a potsie is - educate me? And I'm hoping the tests find no Lupus. I have three friends who have Lupus and my neurologist, whom I adore, was just diagnosed with it and she is taking medical retirement. Keeping good thoughts for you.
klizzyb
@klizzyb Hi! I am newly an official spooner. Surgical diagnosis confirmed why I have felt horrible since age 12. I am now 30. The diagnosis of endometriosis, IC, and heart palpitations were all diagnosed recently. Sometimes I don't want to go to the ER for fear of being labeled a drug seeker. My pain is crazy real & always has been. I am thankful for a group like this! ❤️ A share group cut me yesterday bc I missed 3 shares out of 129. 🙄
klizzyb
I have been placed into chemical menopause (technically a form of chemo) in order to preserve my fertility. 🙏
starbabyonline
@klizzyb Katherine, that's crazy about the SG! I am thankful I have always been in share groups full of wonderful PFFs. Most of them have a image/info post in my closet. Unless someone is constantly missing shares, everyone understands that life happens as long as you notify the group that you can't finish shares at cut off for some reason and you finish your shares later. Glad you're in here with us.
starbabyonline
I am trying to keep positive thoughts today. The company I started working p/t for scheduled me for f/t today and Thursday. I started a fibro flare (which I'm trying to ignore) on Sunday night, so if anyone sees this, positive vibes/prayers/shaking chicken bones/bad jokes to make me laugh are appreciated. ⭐️
dejavue22
@starbabyonline perfect description of living with chronic pain or illness! I'm going to 'borrow' that!!
dejavue22
I know I'm a spoony but not sure how to join in ladies but glad I found this! Been suffering from botched neck fusion in 2007 with other complications since and I'm hoping I can sell in Poshmark to pay some of my extra doc copays and meds! I feel better just reading these comments that so many people found each other!
starbabyonline
@lillylife Aww, Trish, you're too sweet. I got a big smile just reading that. Mondo pain today because of yesterday, so I am not really looking forward to tomorrow. My days has consisted of pain meds, lot of kratom tea, and ice packs so far. Finishing up the compulsory SG's and will be doing my spoonie shares when I'm done.
starbabyonline
@dejavue22 Martina, nice to meet you! I see you're new to Posh, so I suggest you look at the prohibited items list you agreed to when you joined. Unfortunately, perfumes and household items are on that non-compliant list and will result in other Poshers not sharing (or even buying from) you. Check my "Posh-compliant" listing for the exact verbiage from Posh. I'll be more than happy to share when your closet is compliant. Continued in next comment...
starbabyonline
@dejavue22 Share Groups (SG) are a way to get your items out into the Posh-universe, to people who are not currently following you, so it is a golden opportunity for more visibility and sales. Most SGs have a minimum amount to share each day, and/or a specific item, color, brand, or whatever to share as well. In here, we're just here to help as you are able to support other spoonies on Posh. Please feel free to ask any Posh-specific questions and I'll be glad to help you!
dejavue22
@starbabyonline I actually read it very thoroughly and it states they do not condone selling USED make up and perfume as that's plain unsanitary ! But new in box is not listed as a no no..?! I'll read up some more though! Thank you! I'll be back to visit you!
starbabyonline
@dejavue22 Yep, I have the exact Posh policy in an image in that post. Perfume/nail polish is prohibited to be shipped by the USPS because of it being flammable. Since Posh ships via USPS, we cannot ship any of those items.
starbabyonline
@lillylife Aww, you're making me cry happy tears! Yes, positive support is SO important for any spoonie. Just have to make sure you don't get bogged down in continual pity-parties. They have their place for a short period of time. Hell, I had a stroke, heart attack, and kidney failure all within 4 weeks of each other in 2008, so I had a HUGE one, lol. Con't...
starbabyonline
@lillylife There are some really good support groups on Fb and IG but even those tend to go thru periods of extreme negative rumination which isn't good for anyone. My true support circle is VERY small, but I know I can talk to them about virtually anything. In FL, pain mgt is a lot different than other parts of the country because the opioid epidemic is so out of control here. I go to pain mgt but am on the absolute lowest mg's of oxycontin
starbabyonline
@lillylife Ketamine is reserved for only terminal individuals here. Have radiofrequency ablation scheduled for next week before school starts back. The kratom actually helps more than the oxy's do. Used to use Lidoderm patches for close to a decade before my ins said they weren't paying anymore. Sigh.
starbabyonline
@lillylife FL just became a medical marijuana state but has so many rules and regs attached to it currently, it's ridiculous. It is one of the few things that works on my fibro, migraines, anxiety, and spinal & stroke pain. Of course, insurance doesn't cover it at all, so it's out of the question for me right now because I can't afford all of the financial hoops I'd have to jump through.
starbabyonline
@lillylife Sending a bunch of spoons back atcha sweetie!
starbabyonline
@lillylife Trish, I had to work a f/t shift on the p/t job I just got, BUT ended up getting a horrid migraine that incapacitated me and had to cut my 1st shift short & wasn't able to do 2nd one. I was down all night, too. Not a fun day. It's still there slightly this morning, but I have a short (thank goodness!) afternoon shift I have to complete.
starbabyonline
@lillylife Thanks for thinking of me - I appreciate it!
starbabyonline
@kitty2528 If you happen to have a chronic illness and consider yourself a Spoonie, I have this *very* loose SG with basically no rules except Posh-compliance and the desire to help other Spoonies on Posh. If you are not, disregard this, but let anyone you know who is about it?
beardnbutterfly
@starbabyonline oh, I should probably tell you, this is @hjmarquis new closet name!! I hope everything is well with you! ❤️❤️❤️🦋🦋🦋
starbabyonline
@beardnbutterfly Hey. I saw that name a few times last night but didn't see your name change announcement anywhere. Thx for letting me know. Just had outpatient surgery yesterday so ouch-ing today, but otherwise okay. Hope you are too!
beardnbutterfly
@starbabyonline ha! There was an oops on my name announcement. I had things made up....with beardANDbutterfly, then found out there was a 15 character limit. So stupid. Posh..why ya gotta restrain us?? 😂😂😂 Sorry for the surgery, but im hoping they gave you some good pain killers! that should make the day better, but watch yourself on poshng! you never know what could show up in 2 days. 😂😂😂😂❤️❤️❤️❤️
starbabyonline
⭐️⭐️ Sent everyone a very belated share of their top 5. It's been a crazy past couple of weeks. ⭐️⭐️
kitty2528
I would love to join "The Spoonies Group", I am just not quite sure where to no, or how to. My Closet I'd Compliant because I also belong to the Vintage Group. Can you Help me? Thank you, Kitty2528111
starbabyonline
@kitty2528 This is a VERY loosely organized group. It may become something more organized at a later point, but for now, just share as many items as you wish from each spoonie who's commented, when you can. Example, share 5 items (or more) out of each spoonie's closet. You can do it daily, or when you chose/are able. I'll occasionally lower the "price" of this, so everyone gets a notification reminder.
starbabyonline
@kitty2528 Make sure you've "liked" the post so you get the reminders. ⭐️⭐️
kitty2528
@starbabyonline Thank you So much! I am having a LOT of Health issues, and sometimes I just can't keep up and feel horrid. I don't know What the Cardiologist is going to say, and have to start at a Lymphodema Clinic which they tell me is very intense and time consuming. So Thank you very Much! All this Medical mess is new to me..so..😢😢💔
starbabyonline
@kitty2528 Take one day at a time. Educate yourself about your illness. Keep a warped sense of humor; it really does help. 💜💛💚💙❤
starbabyonline
I added a new image I found today on Instagram. LOL! I think I'm going to take it with me to my next appointment with the new orthopedic doctor.
lynda721
Spoonie Here! 🙋🏻 Meet my PFF, Karen @flutter_buys... Also a Spoonie.
theeclecticeye
Hi, all! I'm a Spoonie too - I have something called Postural Orthostatic Tachycardia Syndrome (POTS) Dysautonomia, which basically means that my autonomic nervous system doesn't work as it should, causing a myriad of symptoms. I am an RN & practiced for about 20yrs before becoming disabled. 😕 I love that there's a group of Spoonies connecting on here! I don't make much but it's the only way I've been able to bring any funds in to the house since I got sick! Happy Poshing, Everyone!
starbabyonline
@lhaag721 glad you're here! Welcome to @flutter_buys as well!
starbabyonline
@jocelyn1972 Glad you're here. I believe there's another spoonie in here with POTS. Getting ready to go to bed, or I'd check through all the posts above. Always happy to welcome another spoonie to the fold.
starbabyonline
⭐️⭐️ Everyone: Please share my upcoming party post? Thanks! Definitely want to support other spoonies with host picks, ⭐️⭐️
theretromuse
Hey💃🏻I saw your shout out on Facebook for other spoonies and I said, "that's me!" 😀. I have narcolepsy, cataplexy, and epilepsy. My husband says that he's sure if there are other epsys I have them😄I had to retire early from teaching this year because it got more difficult and I can sleep from 3 hours a day to 20 hours a day so Posh activity can be more erratic than I'd like. My sleep is fragmented so I may appear to be online a lot, I just have my phone next to me in bed😬I'll be glad to share👍🏼
starbabyonline
@theretromuse Welcome to our spoonie family here! This isn't a conventional share group precisely because of things you mentioned. I have phases of good/bearable days where functioning is fine, then go into a flare, or have multiple days of mega-migraines like the past couple of weeks where I do the minimum possible. Just share as you can, when you can.
mineandyours47
THANK YOU! I've never joined a share group b/c I know that I cannot commit to the requirements. I'm so happy I found this post. I have Hashimoto's as well as a genetic mutation. I never know how I will feel any given day. Thanks again!
flutter_buys
@starbabyonline Thanks so much! Great post!! I took a screenshot of the bingo one to text to my friend! lol! 😜👍 She is always telling me something to do to feel better. Thanks for sharing Lynda! 😘 @lhaag721
starbabyonline
@mineandyours47 Happy to have you here. I drop the price occasionally so you'll get a reminder notification. If you can share then, great. If you can't, no problem. No sharing requirements except supporting each other.
starbabyonline
@flutter_buys Isn't that one great? I can usually have my Bingo card filled up in no time when I meet a new person. Lol.
bellesbureau
Hi! I'm Shannon and a fellow 🥄 ie. I have Dysautonomia (POTS, and pass out a lot), MCAD, EDS, Fibro, PTSD, Osteoarthritis, Chronic Migraines, Sleep Apnea, Chronic Fatigue ... wait, sry, you don't have all day. I better stop! Lol. I am disabled and use Posh to supplement my income.
maidmarian
When my doctor explained what spinal stenosis was, I asked him if he could just inject fluid back into the sponges between my disks! I thought he was gonna have me committed! But it makes sense, right 👀😆
maidmarian
@leanne624 New closet 💞 Could use a HP (and a sale)💞💞💞
a_fire_inside
This is really a great thing you have started. I have wondered for ages what a spoonie was and finally clicked to find out. I have been disabled since 2006 after a work accident at age 26. So many people just dont get it. They look at you and say well you dont look sick/hurt. They judge you as just being lazy...etc. Im a shareaholic and disabled and proud of both. I would like to join and send shares to some lovely people. ♡♡♡ Loren
starbabyonline
@qcshannonleigh Welcome to our family. Sorry, i'd gotten distracted preparing for Irma, dealing with her unwelcome visit, then a business trip out to Santa Fe. NM, and trying to play catch-up through all that. Glad you're here!
starbabyonline
@maidmarian Well, that's not as far off-base as you think. There is a procedure that's similar to that. And I think you tagged a newbie here instead of the party listing?
starbabyonline
@lmw0082 Glad I could introduce you to what a spponie is! I've followed Christine since wayyy back in MySpace days. Well, the first incarnation of MySpace anyway. We have ridiculously loose share rules here because of the nature of being a spoonie. Just share as you are able. Glad you're here!
maidmarian
@starbabyonline is there! Do tell! I can't stand it! And I tagged a newbie whose closet is terrific to look at! It all started with your space aged car!🌹
maidmarian
🌹🎶PARTY🌹🎶 @tpmom @epicstorm @needeebees @daughtrey @debbie043059 @cali_gal @samipoo @dvacante @sparrowsage @nonnacig @lhaag721 @icaton @bluerosevintage @nikkiecakes @kreativekristen @51twenty @dcnativegirl @mamaskiss @iampower @watchgirl33
starbabyonline
@maidmarian Yep, but it's a gel of some sort which is injected into the tissue cushioning your vertebrae. And you tagged people in this listing instead of the party list. Hehe. That kind of night, huh?
bellesbureau
@starbabyonline ty! Glad you are ok!
maidmarian
I'm sick as a dog actually. Keep dozing off and wake myself up coughing!
starbabyonline
@maidmarian Aww, so sorry to hear that. Hope you're feeling better soon! I was gifted wit my fist Scoby yesterday and am going to attempt to start brewing my own kombucha. Want to keep those probiotics in me daily.
maidmarian
You lost me but whatever it is maybe you should save me some!
starbabyonline
@maidmarian A scoby is a culture which sort of looks like a gelatinous mushroom. You ferment it over a week or so with sweet tea and some people add pure fruit juice. It's a probiotic drink which is good for your overall well being, but especially your gut health, mood, and inflammation. You can find it in the grocery store refrigerated section, but it is a tiny fraction of that price to make it yourself.
maidmarian
I have a wheatgrass machine and years worth of seeds and everything, used it twice! No where to buy wheatgrass around here! I'll go check s market for scoba
starbabyonline
@maidmarian Not going to find a scoby - that's the live culture that you use to brew it. Search supermarket (or natural food store) for kombucha.
maidmarian
Ok! Wish you could beam some over! I'm in bed. My son made me soup and dosed me on Tylenol PM! So I'm not long! How've you been! I want those gel injections! Going to look it up!
ladybugluxe
So glad I stumbled on this! Hello fellow spookiness! Mom of twin boys with a chronic illness since birth. You all are an inspiration! ❤️❤️🙌
starbabyonline
@jcrewgal81 Hi, Ann! Glad you stumbled upon us, too. Welcome to our ever-growing family.
ladybugluxe
@starbabyonline thank you ❤️
bellesbureau
@jocelyn1972 hi! I have POTS too!
starbabyonline
⭐️⭐️Ladies: Please remember to share possible host picks to my dressing room tonight or tomorrow for possible inclusion for my Saturday party! ⭐️⭐️
llydia93
Hi, I'm Laura and I have Crohn's disease. This was so nice to find!
ladybugluxe
Proud of you fellow sponnie! ’
relove7
I'm new to PM, 2012 I contracted a verilent strain of ci diff, clostridium difficule 8weeks in ICU. colon, I now have an ileostomy with grade 3 kidney damage, I left weighing 84# and 54 staple I only survivor. Then MVA + back surgery, lost my husband to suicide. I'm only 58 I was a health care professional, gardener etc. Poshmark is the first thing I have been excited about since my illness. I'm so happy to be a part of this community. As I sit here with uncontrolled tears 😭
lovenushuz
Hi Debby! I'm a spoonie 💜 I've been kicking AS (ankylosing spondylitis) for over 20 years. This year it has decided to attack my ribcage in the form of Costochondritis. Holy moly it is a painful one. My bf is handling the boutique and I'm making myself feel useful on Posh. I've been here 22 days. Great to find you lovely ladies. I may not have a lot of energy, but I have a lot of love to give 💕💕💕 gentle hugs everybody 🤗
b3ll321
Wow! Congrats on your hosting.🎉 I'll be here supporting you all the way for your speedy sale. 🤗💲💲💲Hope you can visit my closet for possible pick. 😘 Wish you the best
bgirl13
Hello, I am a "Spoonie" too!!🤗😉
ladybugluxe
Congrats on hosting! I’ve had over 100 surgeries throughout my life. I have chronic long disease and I’m 35 . I am lucky to stay at home with my young twins but some days it is hard when I’m sick.
frock_n_fashion
I am a Spoonie too. Love your sense of humor. Sending you a spoon.
starbabyonline
Boy, and I far behind! This has been a challenging (said through a gritted smile) past couple of months. Welcome to our family @andpet99 @llydia93 @relove7 @lovenushuz @b3ll321 @bgirl13 @star521 -pull up a seat and grab a spoon! 🥄
starbabyonline
Argh - make that *am I far behind! Wish there were an edit button on here!
starbabyonline
@lovenushuz I had costochondritis when I was about 22. I just turned 60. I still remember being hospitalized for three days and that being one of he worst pains I've had, so I definitely feel for you! If you have any newbie Posh questions, please ask.
lovenushuz
@starbabyonline shared all of you lovely ladies today; may you have a pain free week. And remember...damn, you Look GOOD 😊
lovenushuz
@starbabyonline please add me to your share list ❌⭕️
lovenushuz
@katieskorner sent you some posh love 💕💕💕💕💕
lovenushuz
@starbabyonline you are a love! The heart attack feeling is unbearable. I am having some success with accupunture, cupping and massage 💆 yep, I get a breast massage every week 😉😊😂
starbabyonline
@lovenushuz Lucky you! LOL! In all seriousness, wow, I wish my insurance would cover massage. I have an incredible massage therapist but I can rarely afford her. Massage helps SO much with my fibro, arthritis, and messed up spine, including a torn rotator cuff I've been dealing with for almost a year. They'd rather pay for for expensive meds and invasive procedures which do not even touch what massage does for helping me be closer to pain-free.
starbabyonline
And, I'm off to classes again. School is kicking my butt this semester.
lovenushuz
@starbabyonline my insurance doesn't cover the massage either. I pay $65 a week. I agree with you. I want the holistic approach, screw the anti-anxieties and anti-depressants. Ridiculous. Don't get me wrong; I would never give up Enbrel. But the others I can do without. My insurance covers accupunture! Waouuuuuuu! Can you believe it? Good luck on your courses. We all need to have a purpose to keep chuggin. Gentle hugs, and "give me back my spine" 😂🤣😂
kimmiegm1
OMGOSH so happy to find you all😊 I've been a Spoonie for many years & it's soooo nice to finally find a Share Group (I belong to None) that is also a Safe place to fall. 💕 Thank-you so much😘
starbabyonline
@lovenushuz Per your last comment: Have you ever seen the comic that says "I've got your back" and has a hand grabbing the spine out of a stick figure's body? Yeah, my dark sense of humor gets me through.
starbabyonline
@kimmiegm1 Kim, nice to meet you! Welcome to the family here. Since you're not in a share group already, please feel free to ask any questions. This one is a VERY loose group. No minimum shares, no commitment. Speaking of which, I'm way behind on shares for here.
lovenushuz
@starbabyonline we always have to keep our smile 😁 and our sense of humor 😂 Thank you for the shares 😘😘
starbabyonline
🥄 Extra spoons for everyone! Just shared 5 top items from everyone's closets! 🥄
mrstomsha
I know how life as a spoonie can be. I’m here if ya ever need an ear...
starbabyonline
@mrstomsha Hi Carrie, and welcome to out family! Just shared 5 for you. 🥄🥄🥄🥄🥄
craycrayrach
I can’t believe how many people are on this list, but it’s comforting to know I’m not alone. 😌
craycrayrach
BTW, the spoon immediately caught my attention! Happy Poshing Spoonies!
starbabyonline
@craycrayrach Welcome to our ever-growing family. You're never alone here. Shared your top five 🥄🥄🥄🥄🥄
craycrayrach
@starbabyonline Thank you!
poozer50
@mommy387 spoons for you
mommy387
Thank you for creating this post. I feel this way a lot, and I will share this post with my family so they can understand. I did not quite know how to articulate this.
starbabyonline
@mommy387 Melvia, you're welcome! Feel free to share other spoonies here whenever you have time. Go onto Christine's butyoudontlooksick.com to see the Spoon Theory in its entirety and share that to your family. It usually makes a world of difference. Welcome to our family. 🥄🥄🥄🥄🥄
denisekre22
I was so surprised to see this! In a good way. I am a spoonie - dealing with Ulcerative colitis/j-pouch and Crohns disease for the past 30 years has been challenging. Count me in as supportive!🌹🤗💜
starbabyonline
@denisekre22 Welcome to our family, Denise. Just shared five for you. 🥄🥄🥄🥄🥄
ashlyn_bekah
Thanks for following my closet!!☺️💕
claudette621
Hi 👋🏽 everyone! I’m Claudette and I️ was diagnosed with MS in 2010. I️ never expected to find a support group on Poshmark, but I’m happy I️ ran across this information tonight.
starbabyonline
@claudette621 Hi Claudette and welcome to the family! Just checked your closet and see you're from Waldorf. I actually know where that is. A boyfriend from decades ago was from there. Went there once with him and remember it being very small - is it still? Shared 5 for you 🥄🥄🥄🥄🥄
claudette621
Thank you!! Waldorf is much different now...a mall, strip malls everywhere, any piece of land that can be used to build on is pretty much taken, not to mention the traffic is just horrible :-( Thanks for sharing, I will return the favor :-)
jetsbabexio
I'm so glad I bumped into this post
frock_n_fashion
@jcrewgal81 🙏🏻🙏🏻🙏🏻
frock_n_fashion
In the season where love and gratitude are in the air, I also feel a deep sadness. Following and sharing my fellow spoonies. It feels as if my efforts are almost fruitless. Please send some spoons. God bless and Happy Thanksgiving😎
amplifyart7
I, personally, Hebrew a chronic illness only when pregnant. But my mom and best friend both suffer from debilitating chronic illness. Love this.
keeniekiss
I can't define my illness as tough as others. For me.. I have RA... It's a painful Auto immune disease that "flares" whenever it wants to. It's so nice to see that someone @starbabyonline cared enough to make a group about it. God Bless All of you
ashely88
I love this so much. I discovered the spoon theory in 2009 when I was diagnosed with Crohn's disease. I'm happy to see there is a group for this. :)
starbabyonline
I promise to address everyone's posts as soon as possible. Last week of school, going crazy getting projects done, and finals are next week, on top of being ill. Sorry I haven't answered anything in the past week or so. Spoons for everybody.
cresentcitygirl
Hi fellow spoonie! I am Christi...doing the same here on Posh...trying to make a living! Lupus (SLE), PTSD, RA warrior from Alabama! Hope you are doing well,,,the cold weather is starting to slow me down physically be not mentally! Sending you love and spoons! -C 💜
fashionreclaim
I would love to join ❤️ I’ve had MS for over ten years and am fully disabled and if it weren’t for discovering my passion I’d still be bed-bound. Fashion and vintage gives me life. ❤️
glamhan89
I didn't know this listing was here until @fashionreclaim told me about it. I am a spoonie. Your right. No one wants to be. I keep my private life private from other poshers accept this listing. I have Lyme disease,rocky mountain spotted fever and Pudendal neuralgia. I am at home ll of the time and my mother takes my sales to the post office for me. Thank you for reading a little about why I am a spoonie.
southerntngurl
@starbabyonline Debby I’m so happy I found your “Spoonies Group”! Just a little about me..Lupus, Chronic Migraines, Fibromyalgia,Neuro-Stimulator implant ,Pain Pump implant, Osteoarthritis. I’ve had 5 surgeries already this YR. I totally understand feeling much older than our age..I’m only 49 but feel 75.
southerntngurl
@starbabyonline I’m So happy to have found Posh it gives me a reason to get up everyday. Thank You so much for starting this group! I just recently started Co-hosting a share group @shares4you It truly helps me get through each and every day. Happy Poshing Ladies‼️XOXOXO
starbabyonline
@jetsbabexio @star521 @amplifyart7 @keeniekiss @ashely88 @cjc131 @fashionreclaim @glamhan89 @mtallent1 Thanks so much for being part of our family. I am trying to play catch-up with holiday craziness. Will share your closets when I get back from running errands. Year-end spoons for everyone! 🥄🥄🥄🥄🥄
frock_n_fashion
Sending you spoonfuls of holiday love and prayers for a new year filled with beautiful things.
mmckemie11
@starbabyonline, I have PTSD, fibromyalgia, EDS, Chiari malformation, osteoarthritis etc.
safariroadgirl
👋 here! I’m a spoonie. Fibro, Psoriatic arthritis. Great idea!💜💜💜
messtodress
Thanks for starting this group ... I discovered poshmark exactly 2 months ago ... it has given me something to feel good about as I struggle to make sense of what I’m going through with my health. I think poshmark has been a Godsend to many ladies that have health issues ... I feel very fortunate every day that I have a package to mail :) Thanks again for starting a group where we can share our struggles & our victories 💗
starbabyonline
@star521 @mmckemie11 @safariroadgirl @messtodress Nice to meet each of you! Sorry it's taken me so long to post. School is kicking my butt this semester.
frock_n_fashion
@starbabyonline what are you studying?
safariroadgirl
@starbabyonline good for you!
starbabyonline
@star521 Graphic Design, concentrating in Illustration, at the University of South Florida, St. Petersburg.
starbabyonline
@safariroadgirl Thanks. It was done initially to prove a hospitsl staff neurologist wrong, after he told me I'd never be able to do or learn much after an Ischemic Stroke in 2008. After a six month pity-party, I took it as a challenge to prove him wrong. I currently have a hard-earned 3.875 GPA. 😁
frock_n_fashion
@starbabyonline awesome. I would love to study graphic design. Just take it one day at a time. 💗
frock_n_fashion
@starbabyonline 👍🏻
starbabyonline
@star521 That's what I've been doing. This is an incredibly competitive program. It is my major right now (switched from psychology) but portfolio review to officially be accepted into the degree program is this coming week. There are only 20 spots open for the entire 2018-19 year. I'm basically not going to be on Posh all week because I will be incredibly stressed whether I want to or not.
frock_n_fashion
@starbabyonline just breathe and prioritize. Posh will be there when you have taken care of want is important. 💗
nia1113
@starbabyonline I have fibromyalgia and arthritis (as well as a couple more "fun" ones)! I've never read the book, but I'm very interested in checking it out! Was diagnosed with fibro in 2001 before I even turned 30. Since then it's been a rollercoaster of trying different meds, chiropractor, physical therapy & even yoga & meditation. I've learned that it's a bummer of a syndrome to live with ~but the key word for me is"live" & I try to live and not just get by or "survive" with this. ♥
nia1113
@starbabyonline ...The pain faces & number scale pic☝ is hilarious!!😄 A sense of humor is essential, don't you agree?! I've met many others here on Posh who also live with chronic illness (or illnesses) so, this community has been a great way to connect to people who truly do understand what it's like. They'd never say any of those things to us!!☝ I'm so glad I saw your post. You may have already said this, but what is the name of the spoonie book? 😘 💟,Nia XOXOXO 💕
starbabyonline
@nia1113 Nia, glad you live by the laughter cure. It always helps! The Spoon Theory isn't from a book. It was an essay written my Christine Miserandino to explain a chronic illness to a "normal" friend. If you just Google it or visit ButYouDontLookSick.com you'll find it on her front page. It's always been a godsend for explaining how challenging life is to someone who doesn't have a chronic illness. Keep smiling! Spoons for you 🥄🥄
starbabyonline
To anyone who happens upon here this week: I could use some spoons 🥄🥄 this coming Wednesday. Weird surgery (is there any other kind?) on my arm. They're opening it up and wrapping one nerve around another so it will hopefully regenerate and I don't lose nerve function in that arm. Sounds all sci-fi, doesn't it? School is in its last three weeks, I'm going to have final critiques in four studio classes, and deal with recovery on top of that! Always something to keep me on my toes!
ronimase
We belong! Claim a spoon and reserve one for me! @trail_raven @barneysbargains
starbabyonline
@ronimase Hi Roni - how have you been? I've been awful about sharing lately. School is kicking my butt this semester!
starbabyonline
@lillylife Aww thanks, Trish. I'm not understanding your lowball question?
barneysbargains
@ronimase 💗💗💗 this so very much!!! I’m spooned up gf!!!
starbabyonline
@lillylife Oh, okay. If it's affected my algorithm, I haven't noticed. I haven't countered anyone because I'm crazy broke right now and I don't want something accidentally accepted. I've either been ignoring or declining if I don't want to see future price drops. Honestly, I don't like the price drop public because I don't want to drop my price every time Posh decides they're going to offer that. My profit margin isn't high enough for that silliness.
starbabyonline
@barneysbargains Hey Janelle. Waving south to North Port. Wish I could dip in the springs there! Haven't been in so many years!
starbabyonline
@lillylife Yep, I usually just drop the "price" on this, but I was sending deals for every single thing in my closet because I'm in a money crunch right now, so figured I'd do it on this as well. Updated my sale post; hopefully it'll bring in more sales than I've gotten already today.
starbabyonline
@lillylife Oh baby, that would solve so many problems right now - hah!
starbabyonline
@lillylife There - I counted with $4000 lol
barneysbargains
@starbabyonline Waving 👋 back! I’ve never been - does it really help?
styledlife
@lillylife Oh no- I'm sorry. I must've hit a wrong button somehow!
starbabyonline
@barneysbargains I haven't been for about 4 years, but yeah, it feels good. Kinda expensive for the day though.
ronimase
Hi Debby! “I’m fine”! I’m sure all spooners can relate to this standard reply to those that ask ‘How are you?’ It’s just so much easier to say rather than go into all the ‘in-fine symptoms. Lol Most people who ask really don’t want to know! Lol You did ask me on Easter Sunday no less! It’s a day I step up my prayers for others. “May God hold you in palms of His Hands, protect you, gently rock you and love you!”
ronimase
(Cont) Yes, I’m definitely a Spooner! The only time I leave the house is to go to a doctors appointment. Lol! This group you’ve started is a blessing for all of us! Somewhere to support and be supported
ronimase
by others who “get” us. No further explanation needed. Your signs say it all! As I read through all these many comments I
ronimase
noticed a couple of themes. Women naming their ailments-affirming and owning the reality of these painful debilitating maladies. BUT: not one person whined, compared or looked for sympathy!! What warriors! What a loving and grateful group of women fighting for relief of their symptoms and to be as pain free as possible. But more importantly, praying for, supporting and loving one another! Wonderful empathy from wonderful women! Yes, I belong in this group and I’m honored
ronimase
to be among such selfless souls! Love to you Debby and every Spooner out there in Posh land! Count on me for sharing but please do not stress. I do not expect any in return. Be as happy, healthy and humorous as you can. One second one moment one day at a time! ✨💜Roni
(Gee! Do you think I went over the character limit?!? LOL)
starbabyonline
@ronimase Roni, only by a little bit, lol. Yep, I never wanted this to be a complaining/renumeration group and it's way too easy to fall into the victim role rather than the survivor role. This has always been a place to receive support and empathy, and a place for others to feel a sense of belonging but not try to one-up each other with symptoms. We all have them; that's a given. We are all super heroes in here, pushing through what is "normal" and easy for everyone else. I loved your posts!
wenrella
Hi, got your interesting invite. I'm already a member so I re ❤️ed to see it up front. I'm so blessed to find you again. Love from @wenrella❌⭕️✌🏽️
spooniesells
@qcshannonleigh Hi! I’m an EDser too! I also have dysautonomia, and MCAD (and Chiari!). It’s always nice to meet other zebras. Sending spoons!
bellesbureau
@spooniesells thanks sweetie! Sending spoons 🥄 back. Hoping you have a flare free day! 💕
spooniesells
@theeclecticeye I have dysautonomia too - NCS. Nice to meet you! I shared some of your awesome items Sending spoons!
spooniesells
@mmckemie11 Hello to another EDSer! I have EDS, chiari, dysautonomia, MCAD and osteoarthritis too.
spooniesells
Wanted to formally introduce myself since I did some commenting already. I'm Jamie and I have Ehlers-Danlos Syndrome, chiari, MCAD, dysautonomia, interstitial cystitis & TBI. My medical bills are what drive me to sell but meeting amazing people are a nice perk as well. I had no idea there were this many spoonies on Posh! Sending my love and spoons to you all!
pearlsandplumes
Love this - thanks for creating this group!
cassiemoi
Awww thank you
starbabyonline
I'm so behind on the welcomes! Having a difficult time recovering after my recent surgery, but will get to everyone eventually.
avengedbeauty
Hi there! My name is Bianca. I have Arthritis, scoliosis, 2 bones that never fused together, a bulged disc, sciatic problems, fibromyalgia and carpal tunnel with a list of the mental stuff as well. And not enough spoons in the day to function always having to borrow for the next day and never any leftover from the day before. I would love to join this group as posh isn't just a way to support me anymore. It's a way of keeping busy to not think about the pain so much.
avengedbeauty
@southerntngurl I had no idea you were a spoonie! I hope you're feeling well today. I'm sorry I have not shared in your group yet today. I was actually just getting to it now.
southerntngurl
@avengedbeauty Well hello my PFF.. And fellow spoonie🥄 😘💋
avengedbeauty
@southerntngurl how are you feeling today?
tanyalparker
@starbabyonline sorry Ive kinda been MIA for a bit. I hope all is well❤️
roseamethyst
Hi I followed most of you. Please send me some spoonie 💕 and follow back. So happy to find other spoonies
she_is_more
@starbabyonline I am a spoonie... I am a chronic migraine suffer and also have fibromyalgia..... I also am a migraine advocate with the American Migraine Foundation so if there are any spooners in this group suffering from migraines and lost please ask. I want to help point you in a direction of help. As all of us know you can’t cure chronic condition but we can help.
jenrossi1217
@styledlife nice to meet you, fellow 🥄!
jenrossi1217
@chellebellesc nice to meet you, fellow 🥄!
starbabyonline
Just as a reminder, no one has to ask for permission to be here and only share your challenges IF you feel comfortable doing that - NOT a requirement. ☺ This is just a spoonie sisterhood (so far, no brothers here that I'm aware of) to support each other when we have time and/or are not hurting too much. Share as you are able. We are all survivors, not victims. Behind as usual - welcome to all the newbies!
bellesbureau
Dysautonomia Awareness month is October and we are having a fundraising dinner Oct 13. I would like to sell my closet and donate all of the proceeds towards our goal. All money goes straight to Dysautonomia International, who I am a co chair for. Please pass this on, especially to those will a chronic illness such as Dysautonomia/POTS,EDS. I will happily pass on the donation link if anyone wishes to do that instead. Every dollar counts. Thank you!
starbabyonline
Hello to all the newbies here! I've created a super-simple one day, one share per closet "It's a Sale!" Share Group. Look for it at the top of my closet, or under Women : Other if you catch me in the middle of sharing. Lots of spoons for everyone tonight!
kgarfield22
This is such a great idea! I quit work and started on disability about a year ago, and Poshmark has been a great way to make and save money 😊
fleurdelisposh
@qcshannonleigh POTSY here too! I’ll do some sharing for you!
fleurdelisposh
@starbabyonline thank you!
bellesbureau
@meloconnor ty so much!
amellor95
(1/2) Hi there, I’m Allie and I’m a fellow spoonie who would like to join this group! First off, I am so beyond thrilled that this group exists; a huge grin came across my face when I found it. I am a fibromyalgia sufferer with POTS being worked up for EDS with a geneticist; additionally, I am being monitored for SLE.
amellor95
(2/2) I have found MyFibroTeam (an app!) to be helpful in gaining support, and would love to be able to join this group. Sending gentle hugs your way, and hope to hear from you soon!🤗 #copingadmirably
dovajean
Hi. I am Monica and I am a spoonie. I saw your book somewhere online. I will pick that up soon. Chronic Illness sucks.
I hate what it does to my family. Take care
ladies.
punkchic_gigi
Hi everyone 🙋♀️ I'm Rachel (aka GiGi) and I'm a spoonie. I saw this group months ago when I first joined Posh and was intrigued. I love that Posh can not only be a buy/sell forum but a social and communicative one as well 💗 I'm always nervous to talk about my condition with others as it's more mental than physical. I'm hoping you all will accept me as a fellow spoonie 😊
punkchic_gigi
@starbabyonline thank you for allowing me to join your group. I love to share closets and I love building relationships and trust. I appreciate you! 🤗
punkchic_gigi
@avengedbeauty hi! Glad to see a familiar face in this group! I still adore those cardigans I got from you. I wear them all the time! 😍 @she_is_more nice to see you here too girl! 💃 I don't want to feel completely out of place lol!
seriouslyviolet
I just 💖 that I "stumbled" across this post ~as I tend to stumble across many things. I'm Linda, I have MS. Thanks for posting about the spoons. 💕💕💕
starbabyonline
Hi everyone! I promise personalized responses soon, but I've been having a really bad flare and have been out of my pain meds since Sunday. I'm going to drop the price so everyone sees this, but I promise to address every comment as soon as I'm feeling a little bit of relief.
catgirl26
Hi! I'm Ronda and am a spoonie, too. Endo and fibro. I really appreciate the low key vibe here -- sharing when we can with no time deadline. 😉
jayroo
Amazing. I wind up saying...nothing, I’m fine...all the time. No one wants to hear it
jayroo
And omg I love so many of your socks
starbabyonline
@catgirl26 Hi Rhonda! Nice to meet you & glad you're here!
starbabyonline
@jayroo Hey Jennifer. Enlarge the Real Pain Chart above and tell them what kind of day it is. A little humor goes a long way. Keeps me sane (or saner), that's for sure! Give/email them the link to The Spoon Theory too. Some people honestly don't understand how all-encompassing chronic illness is. I'm short on spoons today already, but always keep an extra in reserve for others!
starbabyonline
@jayroo and thank you! I have Spoonie jewelry too. Just have to take better pix of it.
starbabyonline
@seriouslyviolet Linda, very late, but you're welcome. Glad you're here!
starbabyonline
@punkchic_gigi Rachel / GiGi we're glad you're here too!
starbabyonline
@dovajean Hi Monica and very belated greetings! We're glad you're here!
starbabyonline
@amellor95 Hi, Allie and a very belated welcome! Of course, you're already in. Share as you can and make yourself comfy.
catgirl26
@starbabyonline Aww, thanks! ❤️
starbabyonline
@catgirl26 whoops and sorry autocorrect got your name misspelled. Apologies! I know that drives me nuts.
attud2
Just seeing this for the 1st time and 💕💕 I am a fellow Spoonie as well. PVNS in the ankle, Osteoarthritis, and Collagen Vascular Disease. The coping skills learned show strength alone. It’s a Warrior Spirit!!! Hello to all the Warriors🙋🏼♀️🦋❤️😊
starbabyonline
@attud2 welcome to our family. We love supporting other spoonies as we are able.
melanieadele
Glad .. I mean.. yeah. I'm a sponge. I guess having Juvenile Rheumatoid Arthritis makes me eligible. Love a group like this for sure@
starbabyonline
@blushposhtique and @melanieadele welcome to our family! You're always welcome here. Lots of spoons to both of you!
curatedcache
I’m a spoon is too! Diagnosed with MS last month, but suspect I’ve had it for over 20 years. I’ve had multiple attacks since the start of the year and haven’t been able to work. Poshmark has been a godsend. I’m so glad to find this post and will happily share and support my fellow spoonies!
yakkityyakk
Hi fellow Spoonies! Hope everyone's bodies are treating them nicely today. I was diagnosed with severe Crohns Disease in 2005. Permanent ostomy surgery in 2015. PTSD & anxiety in 2016 and POTS in 2017. So glad to have found this little spoonie share group thanks to Debby 😊
starbabyonline
@curatedcache sorry for the delay in answering. Life got in the way. We're glad you're here! I think most spoonies have had chronic illnesses longer than their actual diagnosis. Share as you're able. No pressure. Lots of spoons for you!
starbabyonline
@yakkityyakk glad you are joining us! Hoping your wish rubs off on me today and makes this not a " bed day" because I have things I need to get done! Share as you're able; no pressure. Lots of spoons to you to get you through the week. ⭐
mdbeachgirl
Spoonie here 💕 I’m going on 7 years of trying to pace myself..... The spoon theory is the greatest way to explain it to other people and you know they have no idea 🤪 It’s nice to know people understand 💗 I love the phrase “You don’t look sick” *rolling my eyes” 🤦🏻♀️
starbabyonline
@mdbeachgirl if you've figured out a way to successfully do that, please share? 😂 Going on 20 some years from my first diagnosis and I still can't seem to find that mythical formula. Glad you've joined us! Spoons to you!
mdbeachgirl
@starbabyonline yeah I said “trying” 🤣😂 WOW 20 years. I guess I’m still hoping the drs will find a cure. The hardest part was accepting that my life has changed.....
phoenix_kitten
This is a lovely idea
starbabyonline
@phoenix_kitten thank you! If you're a spoonie, I hope you'll join us.
phoenix_kitten
No complete diagnosis yet for me but hypermobiloty is is an issue and multi dimensional instability in my shoulders along with almost constant muscle 0sin & other issues
starbabyonline
@spoonicorndream
marcenebt99
Just tired of the pain. I stayed over my daughter's house, watching my grandkids. I slept on the couch because she has a high bed and I could not get climb into it. Not even from a kitchen chair. My hips, and back went into spasm when I tried. Every time I tried. I gave up, defeated, I went in and slept on the couch.
spoonicorndream
Hello everyone! @starbabyonline Thank you for inviting me! I'm an undiagnosed spoonie with exercise intolerance, trouble breathing, dysautonomia (possibly POTS?), hypermobility, etc. Health problems are no fun, but I'm so greatful to have found such an amazing & supportive group. The spoonie community is fantastic!
srk4
I’m a spoonie, I have bladder Pain Illness known as IC. When I had kidney stones blasted 2 years ago the shock waves were too high & it thinned my bladder to holes like a colander. They think I’ve always had this & the surgery pushed it into high gear. It clicks with the many Misdiagnosis over the years. I was relieved to get a diagnosis but my husband wonders did you have that or is it surgeon error. I get you sleep to much. I have to cath to put lidocaine in my bladder to manage the pain.
srk4
@starbabyonline 👆🏻😂I’m a spoonie, Read above post please. I forgot to lead with this.💞🤗
shakira_kraken
@bimmy123 - lost a very close friend to CRPS 2 years ago. Sending you cool fuzzies, because you don’t need warm ones! Hugs! ❤️❤️
shakira_kraken
@starbabyonline - thanks for messaging me about this group. I don’t currently have anything in my closet yet but I am happy to share the items of other spoonies. I have a form of narcolepsy and some endocrine issues which has turned me into a hibernating slug many days. It’s been so nice to find Poshmark to be able to buy some clothes that make me feel like a decent human without needing to get out to the store. Thank you.
starbabyonline
@spoonicorndream we're glad you've joined us! Share as you're able. One of these days, I need to gather everyone's names into one or two comments so it's easier to share.
starbabyonline
@srk4 yikes. Used to know someone with IC so know it's tough. My body also has been damaged by another procedure, so totally feel you. Spoons to you!
starbabyonline
@christyshopspm glad you're here. We welcome hibernating slugs and all sorts of other creatures. 😂
shakira_kraken
@starbabyonline good to know in case I morph into something even more scary with less figure! 😂😂
norinej02
I’m. So glad to have found posh I was in a car wreck about 13 years ago which left me with a spinal injury now I live with chronic pain so I can’t work most of the time I have difficulty listing on posh but it does give me something to do and make a little money to help me pay bills
norinej02
I don’t no if my chronic pain is ok here or not I was in a car wreck and it messed my spine up now my spine is deteriorating and has arthritis all in it I stay in pain all the time I don’t work or share on here as much as I would like if I fit in your group love to be a part of it have a very blessed evening
starbabyonline
@norinej02 sorry I missed your other comment. Of course you're welcome here as is anyone with a chronic illness. Glad to have you on board.
wendybrigmon
@starbabyonline lol... i thought and read “I feel like I’m made of roman noodles and can’t find the recipe”. .... Clearly I have issues. Posh is the only thing keeping me going these days. Love your post.
starbabyonline
@wendybrigmon was that in one of the comments? I'm confused too, lol. And yep, I know what you mean. Had to cancel my physical therapy today because I got a migraine, ugh! I need more 🥄🥄🥄
poshstreetluxe
Hi, I’m Kristen, Fellow Spoonie. Fibro, Chronic Lyme, Migraines. 🥄🥄🥄🥄🥄
starbabyonline
@poshstreetluxe hi Kristen! Glad you could join us. There's a never-ending supply of spoons here. 😁🥄🥄🥄🥄🥄🥄
qiascloset
Hi, I'm Qia. Glad I found you guys. I just laughed my way through the last few images. I can SO relate to it all, but the "list of people," the Jurassic Park dude, and bench pressing a Buick are hilarious. Laughter is good for the soul, just like medicine. If only we could bottle it and make it into an actual cure. Till then... We have memes and a great sense of humor.
~ Qia 🌺
starbabyonline
@qiascloset Qia, glad you found us too! Yep, laughter is what helps me get through most days. A long time ago, I was depressed a lot and it always made my conditions worse. I still have depression, but I don't let it own me. I just acknowledge it like my other conditions/diseases and include it in my sometimes morbid sense of humor. It makes things a heck of a lot easier to deal with! Spoons to you! 🥄🥄🥄
qiascloset
@starbabyonline Yes it does. Sometimes we laugh to keep from crying, and sometimes we laugh because we're hilarious! 😂 When my body gets its act together, I'll take my show on the road for my "sit down" comedy show... Because I DANG sure won't be standing up. 😂
starbabyonline
@qiascloset hahaha! I may just join you! 🤣😂🤣
qiascloset
@jenrossi1217 I can totally relate to being the "Bride of Frankenstein." 😂😢 When I work on one area in PT another part of my body gets highly offended. Lol Once I was talking to my 94 yr old aunt about her medical issues, and I was like yep... me too. Lol I laugh, but I'm so tired of it.
Hope you're having a good day.
~ Qia 🌺
starbabyonline
@qiascloset I can definitely relate to that this week! At PT for my balance, my therapist has been working heavy on my legs. Of course, that threw my left shoulder out. I'm like seriously? 🤣
qiascloset
@starbabyonline 😂 🎶The hip bones connected to the thigh bone... My PT worked on my mid-back and my pelvic area got pissed. But I say Thoracic is King. When that goes out it's like Thoracic Park! Rrrrroar! Lol
qiascloset
💁🏽 In my bed wishing I could take photos from it. 😂 I have a lot to do, so I don't want to over stress my body just yet. Baby steps. Lol
On a happier note, I discovered that the ironing board is a great place the use the sweater shaver. I'm tall, so bending over a regular table is not ideal. I may get another ironing board to do my packaging on. 💡Have a good day everybody.
Happy Poshing!💃🏾📦 💰
starbabyonline
@tanyrae here 🥄🥄🥄🥄🥄🥄
starbabyonline
Quick check: how's everybody doing during COVID-19? Ridiculously overextended and busy here if I don't get back to you right away but just checking in on everyone. I was in the hospital for about a month but got out at the end of March and I'm doing better each day. Staying home for the most part, since I'm immunocompromised. Lots of spoons to everyone! 🥄🥄🥄🥄🥄🥄
pacificwinds
@starbabyonline Thank you so much
fancy_butterfly
Oh boy do I belong here. Lupus & fibromyalgia. Spoon theory is my go to!!
starbabyonline
@grammyg22 glad to have you with us! Here's some extra spoons for the weekend! 🥄🥄🥄🥄🥄
messtodress
Glad to find this group again... I had forgotten about it ... great idea 💕
starbabyonline
@messtodress Glad to see you! I'm on vacation status right now but wanted to acknowledge your visit. 🥄🥄🥄
messtodress
@starbabyonline thank you 💕 🥄 💕🥄💕
bgruenk
I have fibromyalgia, TMJ and just got diagnosed with sleep apnea! I get tired at the drop of a pin which I hate! I hope that qualifies to be part of the “spooners”. I love ❤️ to share when I have time and feel up to it! Beth
starbabyonline
@bgruenk Beth, I just saw both of your messages; this and the question on the dress. I'm sorry I've been in a really bad flare for the past week and haven't been paying as much attention here as I should. Of course you're welcome to join and you definitely are a spoonie! Extras for you! 🥄🥄🥄
shoprags2riches
Fellow Spoonie here
trbrandon
@theeclecticeye i have POTS as well! Crazy. I had no idea until my sister got diagnosed
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