A PLACE TO 🦋CHAT, 🦋VENT, 🦋and SUPPORT- Spoonies

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Plz keep Sharing the bracelet listing to help Raise Awareness, but I wanted to create a special place to continue the conversations & support that grew from that listing. I hope it continues to grow here by providing a place for ANYONE to comment/vent, get support, etc.

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Women

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puppylove8 and 51 others like this

74 Comments

angelsapparel @fawnie8, @ses54, @lynnk4, @teresakimbro, @jajac1, @macsgal2010, @dylansgal12, Hi🙋🏼 hope everyone had an easy day. 🦋This is to move our conversation from my bracelet listing, and provide us with a place for us Spoonies to chat! Feel free to check in about your day, vent, get/give support, etc.! Thx, and gentle hugs to each of you💕

May 02Reply

lynnk4 @kaniacangel Hi Fellow Fibro Fighters! Having a bad week, but trying to get through it. Gentle hugs and warm thoughts to all of you today! XOXO

May 02Reply

ses54 Love the snoopy listing! Says it all! 💜

May 02Reply

teresaposhlove @kaniacangel Thank you... it just helps to know I'm not alone in this situation with fibromyalgia and lupus. No one gets when I have a flare up clothes even hurt. 💕🙏🏼🦋

May 02Reply

angelsapparel @lynnk4 sorry to hear that sweetie! Hang in there, tomorrow's half way hump day. Gentle hugs💕 @teresakimbro You're not alone, we definitely understand!

May 03Reply

goensshopping Thank you so much for your shares and support. I have a lot of pain during my cycle and heavy. I'm anemic bc of all the blood loss. I'm just worried but I know the Lord will carry me through. I'm in a lot of pain now. Migraine for days on end. Idk why. Just wanted to stop by and thank you. XO Michelle

May 24Reply

angelsapparel @goensshopping are we both on the same cycle too? We to have quite a bit in common. I have a lot of cramps days 1-3 (on 2 now),

May 24Reply

angelsapparel @goensshopping oops hit "post". ..... I have migraines too, but I live with daily headaches (from a nagging pain to a full blown migraine) so it's hard to tell if mine are related to my cycle or not. I know my heads been throbbing all evening tonight. I'd say part of the cause for yours is from worrying over your test results. Well, I Hope "our" migraines ease soon. I'm going to lay down, TTYS 🙏🏻💕Angel

May 24Reply

goensshopping Praying you feel better. Need to lay down too. Just had to share really quick. Ttyl. 😇🙏🏻🙌🏻

May 24Reply

goensshopping Yup day 2 for me lol. Crazy.

May 24Reply

goensshopping Ok you asked me about my sample items, I'm giving you my secrets lol, ok first off I subscribe to 5 different subscription boxes. Ipsy, Birchbox, Boxy charm, Sephora play and Fab fit and fun. I sell half or more of the items that I don't want to keep. My hubs bought me a year subscription for Fab fit and fun for my birthday present. Also with Sephora, I have an account on there and shop online and sign up for their emails to get freebies when spending 25$ or more cont...

May 24Reply

goensshopping I also have a retail me not account, it's a website that gives you a bunch of coupon codes for your favorite stores. Also I never buy full price unless it's a value gift set. I buy those and sell items individually to make a profit.

May 24Reply

goensshopping That Sephora bundle you were asking about is from my Sephora play subscription. I do 100% of my shopping online. I just buy clearance, value sets, use coupon codes and I shop on HSN. They have great deals and they have felxpay.

May 24Reply

angelsapparel @goensshopping thx for all the info! Sorry I didn't get back to ya till now. I had to take some time off because of pain, and only checking in for a few mins tonight. Hope you're doing better. TTYS🌸

May 26Reply

goensshopping No worries. Get some rest. I slept 16hrs today so I know the feeling. XO 😘

May 26Reply

katieskorner Hello ladies! I have fibromyalgia as well

Jun 02Reply

angelsapparel @katieskorner sorry to hear you're part of the club because I wouldn't wish it on anyone, but you're welcome to join in here with comments, venting, etc. whenever you like. 🌷🦋

Jun 05Reply

flutter_buys Just wanted to say hi and hope you are feeling well! 💜😃💕

Aug 09Reply

angelsapparel @flutter_buys Thx doll, Good & bad days as usual. Hope you're doing well.

Aug 10Reply

goensshopping No never heard of it. The Shack? Where can I find it? Very interested. Thank you so much. God bless you

Aug 11Reply

angelsapparel @lorid20 hi sweetie, glad you found my post and thx for sharing your story too! I'll check out the movie & I'm definitely interested in trying the supplements, but is there a place to find it cheaper? There's a lot of different ones on Amazon, but the cheaper item isn't the supermix it's just the Morning Olifera or is that ok? I really ⬇️CONT.

Aug 12Reply

angelsapparel @lorid20 need energy & something for pain. I'd like to lose some weight too though I do Not think an appetite suppressant is good for me because I usually only eat 1x day & maybe a snack later! What do you think? You can text me 352-247-5915 so it's easier to discuss it, if you want.😊

Aug 12Reply

angelsapparel @sfvhotmess you're very welcome doll! I'm glad it helped 💕 After I found others like us on here, I posted this to give us a place to meet others like us, to share stories, vent on a bad day, etc . I'm going to try to get some sleep now (3:45am,ugh), but you can ---- CONT⬇️

Sep 25Reply

angelsapparel @sfvhotmess CONT - text me tomorrow eve on my cell if you'd like 353-247-5915 (easier for longer chats) and we can share then. GN sweetie

Sep 25Reply

angelsapparel Oops it's 352 247-5915 🙃😀

Sep 25Reply

jewelryforless Thanks for the shares😀

Oct 01Reply

angelsapparel @flutter_buys Feel free to post here if ya need a [hug] or just need a place to grumble about not feeling well.💕 .....

Oct 23Reply

flutter_buys Thanks Angel! 💜💞😁👍 I just might take you up on that. 🙃👍🤗

Oct 23Reply

angelsapparel @flutter_buys anytime sweetie, that’s why it’s here👍 Have a good night/day. TTYL GN💕

Oct 23Reply

katrinadreyer I love this! I’m currently going through tons of tests. I had 2 lab tests come back positive for lupus. I’ve been dealing with major joint pain and zero energy. Sometimes I don’t even want to get up. But I have an 8 year old to care for. Nice to know thee are others dealing with this too.

Jan 27Reply

angelsapparel @katrinadreyer Hey sweetie, you’re not alone! Each of us has our own struggles with chronic illness, and are probably the only ones who can truly understand what you’re going through. Sending gentle hugs💕 feel free to come here anytime! Hey girls, anyone have lupus to help her? @teresakimbro @flutter_buys @2moonfashions

Jan 27Reply

teresaposhlove @katrinadreyer Hello I'm Teresa, I'm so very sorry about all that you are going through. I have Fibromyalgia and Lupus a thyroid that every 6 months has to be changed. They have put me on Benlysta for my Lupus I take Celebrex for Fibromyalgia I tried lyrica I started gaining weight like crazy. In 2 months I gained 25 lbs. I have RA and that Dr treats my Lupus. Until 1991 when I had a major wreck I didn't get sick. Somedays I to don't want to get up

Jan 27Reply

teresaposhlove @katrinadreyer my few tips are. Drink water I'm not a water drinker so I get the no sugar packs to put in my water I drink maybe 5-6 bottles a day. Eat better things for you. Fatty foods seems to drag me down. Fibromyalgia I can't really give you any tips everything seems to trigger mine. I'm going to be a Nana for the first time any day. Anytime you need to chat please holler at me. Prayers for you 🙏🏽🙌🏼

Jan 27Reply

katrinadreyer @teresakimbro I was just diagnosed with Hashimoto’s thyroiditis. That’s how they discovered the positive lupus test however my dr. Thinks it’s something else. He says it’s so low. I’ve tried 2 different meds for it and hoping this armor thyroid works but I’ve noticed some major digestive issues in the past months. I’m scared to eat. I’ve been drinking a lot more water and it seems to help. I’m losing hair due to a horrible rash on the back of my head. It is a lot to deal with all at once.

Jan 27Reply

katrinadreyer Thanks for the advice and support. No one seems to understand what I’m going through. Especially cuz I’m young and look healthy.

Jan 27Reply

teresaposhlove @katrinadreyer your welcome once the test are over and your on the medicine you need give it a month don't give up it takes some to get in your system a full month. REST good rest is a key to help both Fibromyalgia and Lupus if I don't sleep well I know the next day is going to be bad. Stress big one. God bless you and I'm praying you get answers soon. 🙌🏼🙏🏽

Jan 27Reply

edgestyle @goensshopping my pain dc. Has me take ibuprofen, Tylenol & excedrin extra strength when I have migraines! Hope it helps🦋

Feb 14Reply

angelsapparel @2moonfashions of course luv💕

Feb 14Reply

angelsapparel @lorid20 I’m glad to hear you’re doing so well! That’s awesome sweetie! I’ve had some dizzy spells lately & they’ll be changing some of my meds so I’ll wait to try anything new right now, but thx I’ll keep it in mind.

Feb 14Reply

goensshopping @edgestyle It does but on the down side, unfortunately right now I hv uterine issues where I’m constant bleeding, I’m going to have a hysterectomy here in the next few months, but when I take those I bleed ALOT MORE 😢

Feb 14Reply

angelsapparel @kristiana1 Have a good night, and Happy V Day💕 Talk soon

Feb 15Reply

kristiana1 @kaniacangel You too. Thank you.

Feb 15Reply

edgestyle @goensshopping ✨not good✨

Feb 15Reply

goensshopping @edgestyle No it’s not. Sometimes the pain is so bad, I do break down and take the Excedrin migraine because it does help. But I just suffer the other consequences. I’ll pick the lesser of 2 evils depending on the day. Thank you 😊 Praying I get this issue under control soon. It’s been a rough road this past year.

Feb 15Reply

angelsapparel @poshandpositive aww you’re very welcome doll, glad you found us💕 I didn’t even know about you when I commented to say good luck, it’s funny how things work out huh?! Feel free to post here anytime, and reach out to the others in the group listing too. Sorry I can’t chat more right now, but I’ve got a migraine starting so I gotta finish up. Gentle hugs to you too. TTYS

Mar 04Reply

desiredcloset @lorid20 hi I just came across this.. and I’m sorry for all the pain you ladies have to live with daily. My mother just had her second hip replacement (she was having so much pain while walking) thought it would help but the pain is still there. She has bursitis, terrible lower back pain, arthritis in her hands, neck and back, reading above I’m hoping you would be able to give me a recommendation on some stuff that may work for her. Thank you.

Apr 03Reply

desiredcloset @angelsapparel this is really nice of you to do... a place where ladies can come and support each other through their daily struggles. 💗

Apr 03Reply

angelsapparel @desiredcloset thx sweetie 💕 Once I realized there were quite a few of us on here living with these issues I thought it was important to have a place to chat or exchange # to text about meds/diagnosis/therapy/etc. .... Sorry to hear about your moms issues. Has she tried “Facet" and/or Epidural Injections, Nerve block/burning of the nerve procedures?

Apr 03Reply

desiredcloset @angelsapparel she gets the injections all the time. They help temporarily a few days than she aback to the pain

Apr 03Reply

angelsapparel @desiredcloset if the injections help at all then she’s a candidate for “Radiofrequency ablation” (which is (burning the nerve causing pain) it’s non-surgical and the nerve will regrow over the course of approx 1yr, but it’s longer relief than the injections 😊

Apr 03Reply

desiredcloset @angelsapparel I’ll look into thank you 😊

Apr 03Reply

angelsapparel @desiredcloset np doll, Keep me posted 👍🏻

Apr 03Reply

shoplots @angelsapparel I’m so glad you were looking in my closet today because as a result I looked at you and found all of your listings on fibromyalgia. I too suffer from this monster. It’s nice of you to have this listing where we can get together and talk. Thank you💜💜💜

Apr 08Reply

angelsapparel @shoplots YW sweetie, I’m glad you found it! Feel free to vent, ask questions & tag others here for advice, whatever you need is what this is here for! I’ve had a long couple days so I’ve gotta try to get some rest now, but I’ll be back on tomorrow if you’d like to chat. My text # is also listed here somewhere if you’d like to reach out that way too. Hope you have a great night. Gentle {{Hugs}}💕

Apr 10Reply

lanabellacloset @angelsapparel Sunny here. Currently struggling with Fibromyalgia, Rheumatoid Arthritis and other immune disorders. I’m at work and all I want to do is go home and lay down. Bunch of “mean girls” I work with just adds to the stress of a 911 dispatchers job. 😰

May 08Reply

angelsapparel @sunnyree123 hi sweetie 🙋🏼‍♀️ Sorry you have to deal with people like that on top of feeling bad. Hope you’re feeling better now. Gentle <<Hugs>>💕

May 09Reply

lanabellacloset @angelsapparel Home now. Thank you! 🥄 🥄🥄🥄

May 09Reply

revente_closet I have fibromyalgia too among other connective diseases and heart problems which is why I sell on PM to cover bills :( We need more spoons 💕 wishing you lots of sales and painless days my sister.

Oct 26Reply

revente_closet I have fibro, Sjogrens, tachycardia etc etc etc haha I do this for extra money for my medical bills and medicine. I am so thankful to know I am not the only one. My fibro fog does get the better of me sometimes with my labels :( I am a perfectionist and it drives me insane when I don’t do things perfect. Awareness for our disease is key for us. I am so glad to have fibromites on Poshmark 🥀🥀🥀

Nov 11Reply

jubenton361 Blessed my day 2 find u all. Fibro dx'd I was 19, now 50. These last days have been more challenge w leg cramping day &night.Wears me out.I stay very active.By Grace of God I homeschool my 15 yr old. My hubby great provider& supporter of my health. I stay very active w family activities, chores etc. I'm praying 4 yall soft hugs & healing prayers sent ur way. Do pray 4me 2. 🙏😍 praying for strength 2 endure for this moment. I know itll pass. Thank you !!

Sep 03Reply

jubenton361 @angelsapparel ❤🤗

Sep 03Reply

brandi_1981 Hello and thx for the listing. I have way too many things to list and make anyone’s day worse, but I am with all of you and pray for less pain free days. May God bless, each and everyone of you.

Feb 09Reply

screaminsardine Thanks for this! I'm new to Poshmark, and it's nice to see others on here have some physical challenges as well. I don't have fibro, but I do have FND, which is like MS, Parkinson's, Chronic Fatigue, and fibro all rolled into one. It's been a rough 24 hours, but I'm hanging in there. I hope everyone is having a great week! :D

May 04Reply

spookyspoonie Fibromyalga, Gastroparesis, and long list of trainwreck chronic illnesses. Occasional Tubie. love that you made this. 💜💚

Aug 13Reply

mdbeachgirl It’s so nice to feel like people understand chronic illnesses. I have fibromyalgia as well as other conditions. Sending gentle hugs to everyone 🤗

Apr 10Reply

bellam247 Hi luvs🧡... I have progressive MS. But, as it says so well above, these Invisible Diseases!, where we can still look perfectly fine if we want.., or need to!, aren’t seen unless we are using something visible. I’m a psychotherapist/Psychologist- I had several clients with Fibromyalgia- before it was finally acknowledged, and very grateful it was! But the MS took all of that stuff and my career away as well. Had a Neurologist appt Friday -

May 06Reply

bellam247 ...can I say I’m literally beginning to hate her! I’ve seen her for 5 years since I moved to KCK area. Worse bedside manner - and I’m not in a bed!!!🤦‍♀️ But extremely narcissistic! “That’s not a symptom”... why? Because some healthy people in research data says it isn’t..? I have no doubt that most of us, all of us can find enough “signatures”

May 06Reply

bellam247 ...to prove something is!,.... if we only had the energy, didn’t have fatigue, wouldn’t rather sleep!, to prove them wrong. I hope you are all getting what you need💕🧡💕 I find that the more drug problems there are in this country the more difficult it becomes for me to get the pain meds. And the ones I’ve tried and caused immediate weight gain, stopped! But it only came all off the first time. The second one didn’t.

May 06Reply

bellam247 How do I fix that side effect!?!?!? Because I agree I’m on enough meds that the appetite control isn’t going to work! I don’t eat enough!!! But for year we are taught not to eat if you’re not hungry, I guess that backfired in your mid-40s, for me! Feel the best you can on the days you can. I’ve finally gotten better at saying... yeah, NO!!!

May 06Reply

bellam247 .. It took awhile..., that and driving a lifted 3/4 ton truck and allowing myself to park where the tag says I can! But I’m thinking we need a gold one to wear around our necks - just to prove we are allowed to park where we park, walk “too” slow across the walkway, to use the handicap bathroom... to explain that I’m not drunk when I just fall straight to the ground “for no reason”.

May 06Reply

bellam247 .. Hell!, what we wouldn’t give to be drunk when that happens.., it would mean tomorrow we would wake up and maybe only have a slight headache and the only medicine we take is ibuprofen 🙏🌸🦋🌷🌟🧡🌟I’ve been told I text novels, but after that appt on Friday ~ I appreciate finding this today🌺🌟🌺🧡🙏🦋🥵🙃

May 06Reply

angelsapparel @bellam247 awww so sorry you're having a (more than "our normal") bad time. I vent to hubby about how we get treated, mistreated, and even left untreated because of drug seekers and Drs who are clueless on what to even do for us! I also lost my career which I loved because of this 💩 we've been dealt. ...........

May 07Reply

angelsapparel @bellam247 CONT.➡️. For me it's a process in grief that I cycle through and repeat periodically. It finally has gotten easier to accept that I can't do certain things anymore, but as I said it's definitely a process. Anyway I'm happy this post helped you sweetie.💛. My hope for this post was a safe place to vent and/or find others who understood us. Feel free anytime. 🤗🌻

May 07Reply

moonbazaar Nice to meet you , I suffer from this illness too . Many Blessings . Thank you for visit my closet. 💜

Aug 27Reply