pink & purple silicone charity bracelet
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$5 $10
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The bracelet is worn and bought to support Chiari malformation awareness. Chiari malformation is a debilitating illness that causes life threatening issues and a painful life.
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dumire904
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13 others
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22 Comments
kathyk12
Do you have chiari?
leahg1124
@kathyk12 yes I do. Ive had 13 brain surgeries and many complications for over year
kathyk12
@leahg1124 I understand that, I've been through 8 and some spine surgeries. Chiari is brutal on our bodies.
leahg1124
@kathyk12 ive have 4 spine, 6 abdominal, and a skin graft. I was in the hospital for 8 months. Its been a rough year. How long since your last surgery?
mrsspikeb
Hello. I have a chiari as well, but with other things that have happened, I had a mini stroke, and still have monitored anyurisms. So I am inoperatable . I would like one of your bracelets and do you have anything else to help gain awareness? I do have the leggings and also the t-shirt. Thank you.
leahg1124
@mrsspikeb I actually just ran out of bracelets. I need to order more. I’m sorry to hear about everything you’re going through. I went through hell after my surgery and ended up having 13 more brain surgeries. I’ve been trying bring more awareness but it’s hard. Where did you get leggings?
kristinaashleys
My daughter has a CM. Hers is a 12mm herniation.
leahg1124
@kristinaashleys I’m so sorry to hear that. I’m not sure the length of my herniation. Has she had surgery?
kristinaashleys
@leahg1124. Not yet, she is only five years old, if they do it this soon then they will have to do it again once she has completed puberty. If she starts having seizures then they will do it.
leahg1124
@kristinaashleys I’m so sorry to hear that. I’ve been through it all so if you ever need anything or have questions or even need support, please let me know. You and your daughter are in my thoughts 😊
kristinaashleys
@leahg1124. Thanks so much, are you on FB? There are a ton of groups out there for parents and patients. My dad has the CM as well, and has had six surgeries. That's how we knew to test my daughter Ellie when she started showing signs of neurological impairments and some pretty severe issues with her balance and coordination.
kristinaashleys
@leahg1124. How many of these braclets do you have to sell?
leahg1124
@kristinaashleys I had a lot but no one was buying them. I have to find them because it was so long since anyone bought any. I’m so sorry to hear about your dad and daughter. I don’t have Facebook but when I did I was apart of many support groups. They are what kept me going when I was in the hospital.
kristinaashleys
@leahg1124. When you find em let me know, I'll buy several. No rush. ❤
leahg1124
@kristinaashleys I have keychain ones that are cute but they’re more expensive. If you give me a total of how many you want I could put in an order. However, they’d probably be like $8 or so. But it the bracelet as a keychain, they’re nice or I can try and find the bracelets.
bethsclosetshop
I have Chiari (CCI, hEDS, etc). Thanks for spreading awareness. 💜
dakotaflipz
Hi! How many bracelets do you have? Thanks
dakotaflipz
I would like 2 of them
leahg1124
@lovehas4paws I’m so sorry to hear about your daughter. I’m actually out of bracelets. I’ve been meaning to take this post down. I am going to make more soon and once I do I will let you know.
leahg1124
@bethsclosetshop sorry to hear that! If you ever need anything let me know
dakotaflipz
@leahg1124 oh you make them? I was wondering why I never seen nothing like them. Okay Thanks 😊
dakotaflipz
@leahg1124 confused to why this bracelet shows for sale still but you said you dont have anymore???!!! Wouldnt of you just taken the post down by now or better yet just mark it "not for sale" till you get more in? Just strange> Good Luck to you.I will just keep searching somewhere else it makes me nervous buying from someone thats not consistent,
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